Developing an online intervention for caregivers of people with dementia
PhD candidate Qiuxia Li is working with an engaged PPI group, and under the supervision of Dr Hynes and Prof Walsh on the development of the online intervention for caregivers of people with dementia.
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The aim of this PhD project is to develop an online psychosocial intervention for informal caregivers of people with dementia. Informal caregivers of people with dementia experience both subjective and objective burden, emotional distress, and poor quality of life. There are needs for information, psychological, and social support. In this project, a systematic review is conducted to examine the effectiveness of existing research. Patient and Public Involvement (PPI) is integrated to interpret the systematic review and co-produce the intervention program. A feasibility trial will be carried out to assess the intervention program. The findings of this project will better support people caring for those with dementia, with implications for caregivers of other chronic neurodegenerative condition.
Diversifying Dementia Services
The aim of this research was to develop recommendations and identify what the future care needs of older LGTBQI+ people living in Ireland were. It had a strong focus on PPI and stakeholder involvement throughout. The results will help dementia services better support the LGTBQI+ community living with dementia.
Short presentation on the project available HERE (from 1 hour 19 mins).
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Our National Survey has closed. Thank you to all who participated. HERE is a short clip from TG4 on the project.
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Our Facebook page will keep you updated on the project- CLICK HERE.
Valuing Active Life in Dementia (VALID)
2012-2014: I worked as a trial manager for £2million community occupational therapy dementia trial (ISRCTN 10748953).
This was a multi-centre large-scale dementia trial in the UK, the largest occupational therapy trial to take place in the UK.
More information: https://www.ucl.ac.uk/valid
Below are the needs and recommendations that were identified by older people from the LGBTQIA+ community in relation to future dementia care needs.
