Summer Students 20205
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We are lucky to have five summer students working with us this summer on various projects - mostly using an evidence-synthesis approach. For more details look at the "People" tab on this website.
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Alice McKeon: co-supervised by Éle Quinn and funded by Evidence Synthesis Ireland will work on a qualitative project within the People's Review.
Laura Bosner: co-supervised by Éle Quinn and funded by Evidence Synthesis Ireland will work on the People's Review.
Jessica Sayfullaeva: funded by an EDI grant at the University of Galway will work on knowledge translation and health equity outcomes of an ongoing Cochrane review.
Lenora Murphy: funded by CMNHS at University of Galway will work on updating guidelines and a scoping review in MS.
Hazeema Haq (not pictured): funded by AIMS-RN and co-supervised by Fiadhnait O' Keeffe will work on a scoping review in MS and neuropsychology.
Watch This Space
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We are starting the definitive trial of the COB-MS over the summer (2025). We will first be recruiting staff and then we will be looking for people with MS to take part in the intervention. Watch this website for further updates or get in touch and we can add you to the mailing list.
Funding Success
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Based on the results of our COB-MS feasibility trial, we have been successful in funding for the next stages of the COB-MS project. This will involve a definitive trail of the COB-MS where we will test the clinical and cost-effectiveness. We are very thankful to our funders - the Health Research Board- MS Ireland, and all the participants, PPI members, and supporters who helped us get to this stage. We are excited about what is to come.
Full details are available on the HRB website HERE.
COB-MS Results
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The results are in from our COB-MS feasibility trial. We have created an infographic to help better present the trial results. If you want to know more please visit our COB-MS website and have a look at the full text of the published articles we have written.
HRB-TMRN Webinar series
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On 13th October 2022 we presented the results of four studies-with-a-trial (SWATs) that were completed as part of the COB-MS feasibility trial.
This talk was part of the HRB-TMRN webinar series and the PPI National Festival 2022.
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This month (September 2022) two new PhD students started their PhD journeys at the University of Galway- see HERE
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Éle Quinn is an occupational therapist, and will be completing her PhD, funded by Evidence Synthesis Ireland on the topic of "People's Review". Watch this space for more details on this and how you can take part.
Qiuxia Li, funded by Chinese Scholarship Scheme, will focus her research on co-producing an online intervention for caregivers of people with dementia.
Both projects have strong PPI focus so get in touch if you would like to be involved, or just to know more.
Five things older LGBTQ+ people need you to know
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Megan Oglesby and Sinéad Hynes wrote and published a short article on the RTÉ Brainstorm website based on the results of the Diversifying Dementia Services research. Read this article linked HERE.
Why I became a patient researcher - RTÉ Brainstorm
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Robert Joyce, embedded patient researcher on the COB-MS trial, wrote and published a short article on the RTÉ Brainstorm website. Read his article linked HERE.
Improving the quality of health research with patient-researchers
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Robert Joyce, embedded patient researcher on the COB-MS trial, was invited to expand on his Open Letter on the HRB Open platform, through an interview published on the HRB blog. Read about his views on how patients might improve the quality of health research through meaningful involvement and participation. Article linked HERE.
Build-a-Box Campaign
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The Build-a-Box Campaign was chosen as a feature project by Campus Engage- see here.
The Build-a-Box programme, developed in the ‘Community Engagement’ module, aimed to mitigate the impact of COVID-19 on vulnerable groups. Genuine partnerships that are of mutual benefit to the students and community partners are critical for this programme's success. Students are exposed to real-time community issues. They learn to respond to the needs of their partners with empathy and respect, and contribute to creative and sustainable solutions to everyday problems, ultimately building the foundation for life-long partnership skills.
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Interview with GCN
Daithí Cee, a PPI contributor and activist, and Sinéad sat down with Ian Smith from Gay Community News to talk about the Diversifying Dementia Research project, funded by the Irish Research Council, planned in conjunction with Alzheimer Society.
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Read the article HERE on the GCN website.
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PPI Excellence Award
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COB-MS research project announced as joint winner of PPI Excellence in research
February 25th 2021
We are thrilled as a team to be joint winners of the PPI Excellence in research award 2021. More information in the video below, with a longer video on the PPI Ignite Youtube site.
Please see: https://www.nuigalway.ie/ppi/case-studies/cobms/ for more information on PPI-focused aspects of our trial.
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